Wednesday, May 16, 2012

Hair We Go Again!!!

Ha ha!  I am laughing at how lame my post title is...  Sorry!

It's about time for my hair to go again, so Adam convinced me to try a mohawk before the big shave...

And I love it!!  I'm thinking of doing it regularly like this when it grows back in... What do you think??

Mykelle saw my hair and said, "Looks cool, kinda like a dinosaur Stegasaurus!"  Pretty cool in itself to have her mom look like a dinosaur huh? :)

I had a doc appointment today.  Adam came home from work so we could go together while my Bishop's wife watched the kids (she is AMAZING by the way, cleaned my house top to bottom yesterday with another great woman Ari, and in addition to watching the kids today she brought over one of my fave meals: turkey, mashed potatoes and gravy, and green beans.  Thank you Debbie!!)   I had to get a little more chemo- an injection of Vincristine and a steroid, Dexamethasone (10 pills a day for 4 days).  It went well and was super fast.  

My white blood cells are way low, .3 (normal is 4.0-ish) but the other counts are good.  Doc said if I get any sort of fever of 100.5 or greater to go immediately to the ER.   I woke up today and wondered why I was so tired and lethargic, turns out the low blood count is the answer!  But I am taking the Neupogen shots every day that should boost my cells, though the side effect of bone pain has been really strong compared to Cancer #2 last year.  I wake up feeling pain in EVERY joint, the worst in my knees and fingers.  Makes me have a lot of compassion for those with arthritis!   A little pain medication goes a long way though, so I'm feeling especially grateful for it!

I go in for another appointment next Wednesday, this one just a simple blood count follow up to make sure my counts are going back up.  Then the next chemo session of Hyper CVAD A will be started on the 27th, a Sunday evening again.   


  1. Love the new do! Too bad it won't be around too long but you will have something to look forward too that won't take too long to achieve. You're beautiful inside and out! I think the bone pain was the worst part. You are amazing for enduring those shots every day. You're always in my prayers. Hugs!

  2. You have such a beautiful face!

  3. You are absolutely gorgeous!! LOVE the hair!! So sorry about feeling hazy and for the bone pain. My heart is aching for you. I am praying for you. You have such a kind and happy heart, thank you for always making me smile! I love your title post by the way! It's totally rad. :)

  4. Love the mohawk!! And your attitude :)

  5. I'm Emma, a young woman and I think you are so cool! I saw your video on! I hope you know you inspire so many, you inspire me! Your attitude on life and love and passion for things. You rock. There is one thing I will say and that is to look up something called protandim. It could help your fight. Thank you for sharing your story.