Tuesday, July 10, 2012

Crazy Week!

I went in to the cancer center last week on Friday for what I thought was a routine CBC blood check.  I ended up being surprised with the suggestion that we go ahead with the bone marrow transplant the next week, July 11th rather than the 18th.  I was completely taken unaware, and got upset immediately!  I had everything all planned out!  Zack's flight was scheduled, Evan's birthday party, Adam's mom coming out, a week of prep for shopping and cleaning (to leave my house all ready for my leave of absence)... I did NOT want to move it up a week!  But one of the nurses warned me that if we waited the additional week my CD4 count could go up above 200, the critical point, and I'd have to undergo an additional chemo which would push everything back by 3 weeks.  So I agreed to bumping it up.  

I went home and slept off my disappointment, then I made some phone calls and sent out the email to change Evan's birthday party to the next day.  I was a little stressed out, but we ended up having a really fun party and a nice weekend before heading in to my doctor's appointments on Monday.  Where I found out I had not been told the truth about my transplant situation and the whole reason for upping the date on me.  It's a very long and involved story so I won't go into it, but the reason the nurses had wanted to move the date was so they had less paper work to do.  Seriously.  It had NOTHING to do with my health and CD4 levels.  Trust me, I let them know I was very unhappy with the situation.  

The transplant doc, Dr. Donato, suggested we go back to the initial plan of starting the transplant on the 18th so we could check my blood for viruses since I haven't been feeling 100% and give me an additional week to recover from the last chemo.  So once again, the transplant is on for the 18th, though it could always change!  I'm very excited to have an extra week to get things together and looking forward to spending a weekend with my family and my mother-in-law!