The Not Bad: Doctors were very positive and said they see this kind of thing all the time, and are going to cut back quite a bit on the immunosuppressants to let Zach's immune system really kick in and get some Graft vs. Tumor effect to shrink these babies once and for all! Since I've not had any Graft vs Host Disease (GVHD) during the first 100 days, they say I could very likely get some now that we're cutting back. It's also not supposed to be a good sign that I have NOT had GVHD yet. From what I've read, a LITTLE GVHD during the first 100 days is a great sign that the transplant will attack any cancerous cells that might be left over.
Next scan is in 4 weeks- I'll be in SLC getting that scan done and getting to know all of my new doctor team there. I'll miss everyone at JTCC- they've been wonderful, and I'd recommend them to anyone with Hodgkin's! I need to get baking though for my last appointment on Monday- I promised them all some of my famous "Best Sugar Cookies Ever" in little heart shapes with pink frosting :)
Monday I have CTscans (mostly for the study I'm in), a regular/last checkup to have blood drawn and checked, get copies of scans and my medical record, references of docs in SLC, results from my bone marrow biopsy I had yesterday (not bad by the way), and to get another transfusion of blood. LONG DAY! And you might be thinking... but in the last post Tessa said she has become a MAN and doesn't need blood transfusions anymore because she's making her own hemoglobin?? And you'd be right!! I did say that and apparently I'm mostly right (why can't things just be black or white? What is this grey crap?? :) My hemoglobin was only 7.7, which was a little disappointing but still shows some improvement- that I'm not dropping into the 6 range and seeing floating dots or hearing the rushing of my heart pumping blood to my brain faster than usual and/or passing out! I actually made it up all 3 flights of stairs at the cancer center without having to stop to rest- that's always been my own personal test of what my hemoglobin will be before we get results back- Adam thinks I'm crazy.