Tuesday, April 10, 2012

Adcetris Chemo Treatment #3!

Number three is DOWN!  I'm starting to feel better but there's some lingering nausea and headache still.  I even tried to take it super easy this weekend just to see if it would make a difference in the speed of recovery since last treatment I was doing a ton with visitors.  It didn't.  So now I know, it doesn't matter whether I rest or not!  Hear that MOM??  Don't get mad at me when I'm not laying in bed watching TV and eating bon-bons!! :)  

I do have a new side effect to add to the list- peripheral neuropathy!  Tingling of the hands and feet.  It's not very strong and really kicked in the day after treatment but it's weird.  It's like my hands and feet are both half asleep so they're tingly, but not all the way pins and needles.  I hear it can get really bad but fortunately haven't experienced it too much.

The cancer center visit itself went really well.  I was able to drop the kids off a little early to their preschool at Danae's house and go with Adam.  We were in to see the doctor in good time and sent off to the infusion room for chemo where I had one of my favorite nurses helping me.  I had some good friends stop by to chat while I was getting the infusion, Pat and Dennis.  Dennis received a transplant the same time I did in February of last year.  It's been nice to keep in touch with him and his wife over the last year to talk through our different rough spots with each other, since we each knew what the other had been through.  We had a great time talking with them before they had  to leave for their own appointment.  

I was finished before I knew it and on our way to Arby's for the traditional lunch!  But we forgot to take pictures for my blog entry before leaving the center so Adam snapped a couple of the joy of LEAVING after chemo...

Jumping for JOY?  Adam made me do it...
Can you see me back there??  Adam wanted to illustrate just how hypocritical I can be...   I parked forever away
from the entrance even though there were spots available closer... Something I've been known to tease him about
from time to time!
I heard a lot more from the bone marrow transplant trial I'm getting into.  Zack and I have to sign our lives away on a million papers to do it but it will all be worth it in the end!  I now have a better idea of what will be the order of events and what the events will entail, but of course have no idea of the WHEN.  I hate that part!!  How can I plan sitters for the kids when I don't have a time frame?  I may even have to do up to THREE inpatient 5 day chemo treatments (called EPOCH) to bring my immune system down before the transplant but I was told I wouldn't know until 48 hours before going in.  Each time I go in for that would push back the transplant by 3 weeks.   And this is all assuming I'll be in remission soon from the chemo I'm getting now!   SOOO, I basically have no time frame whatsoever.   That's not true... I'd say I will be getting a transplant sometime this year, hopefully during the summer!  

I was excited to get the OK from the doc to travel to Utah for the cool fundraiser happening on the 28th that my awesome USU Ambassador friends are putting together.  I am so looking forward to seeing friends and family and to (hopefully) stay a week in UT!  


  1. Good luck with getting into remission soon so you can start preparing for the bone marrow transplant. The uncertain time frame with the associated waiting doesn't sound like a joy to me either. Good luck to you!!

  2. Don't act like Adam made you do that... You know you wanted to. lol. But your form could use some work. I've seen better from you in the heel-tapping-jump category. - did your date happen to spill an arby's tray full of food on his lap?? Then I doubt your lunch was very fun... HAHA. JK!

  3. I still think you are better off resting!! If you sat down with a huge eclair, you would feel sooooo much better. WE ARE ALL SO EXCITED TO SEE YOU!!!! Love You the most!