|Christmas Day at the church house|
We ended up doing the Christmas Eve/morning routine on Monday night and Tuesday morning. The kids had no idea we had postponed it. We had an enjoyable Christmas Eve filled with gingerbread cookies, eggnog, and stories of our Savior's birth. Tuesday morning was a little crazier as we opened presents and the kids wanted to play with the already opened toys instead of opening the rest of their presents. We finally finished after a couple hours and several breaks. It was nice to feel well for the day and enjoy the kid's excitement.
Since last I wrote, I've had a couple updates on the cancer front. I had two appointments this week, Monday the 27th and Thursday the 29th. On Monday I went in for a CBC and as a follow up after the chemo. It was mostly uneventful except that I found out for sure that I'll be getting another session of ICE after the stem-cell removal (which is this week Tuesday-Friday. It was expected, since the cancer is not yet in full remission. The best part of this news to me, meant that my parents could come out to visit before the stem-cell transplant! They had been planning on coming near the end of the transplant, but the docs recommended people who've recently flown to stay away from me at that point- since my immune system will be at its lowest. They will be out here on the 14th, and will stay until the 22nd. We are so excited! Mykelle prays every night (and nap time too!) that her Grandma Roxie and Papa Mike be blessed to make it to her house. So sweet!
Thursday's appointment was scheduled for 10:40 in the new John Theurer Cancer Center- it's separate from the hospital now, but just across the street. Because they are in the new building everything was very chaotic. I did finally get in to see the doctor after 1 1/2 hours wait just for him to say, "You need a transfusion. See you next week." Yeah... not a big fan of how little time, effort, or care these doctors present their patients. So I was sent to the treatment room to get a blood transfusion. I'd never had one before, so I asked a lot of questions. The nurse told me I needed two units of blood because my hemoglobin was at a critically low level of 6.4 (normal is 12-16). She said she was surprised I was doing so well, that it's low enough to make one dizzy and pass out. I told her I did have a throbbing headache, and she said it was because of the low levels of oxygen I was getting to my brain. The heart starts pumping harder to make up for it, hence the throbbing headache!
Up to this point I had been content with the explanation, and was ready to stay for a couple of hours. I was told the blood would be ready at 2, and finished by 6. Well, that was a problem. Mykelle's Joy School Christmas Pageant was scheduled to begin at 6:30! And I still had to pick up a couple things at the store and then pick up my family before heading over. When I said I couldn't stay for two units, the nurse got the doctor's ok to only give me one, but on the condition that I swear to go to the ER if I feel like fainting over the holiday weekend. I was pacified.
UNTIL... 3 o'clock rolls around, and there's still no blood... 4 o'clock rolls around- no blood... At 4:25 I packed my bag and told the nurse I'd be leaving unless the blood could be started in the next five minutes (getting me out of there at 6). Since that wasn't possible, I asked what they recommend I do after Mykelle's pageant. I was told not to leave, by several nurses and two doctors, but if I DID leave, I'd have to come back to the ER to get the transfusion either in the middle of the night or in the morning. I think I must have panicked the nurses because they were suddenly on the phone yelling at the blood bank (apparently there were *several* mixups with my order). One nurse jumped up and asked me if she ran to pick it up and had it here within 10 minutes, would I stay. I was surprised at her willingness to put herself out like that! Of course I said I'd stay, and she was back, sweating like crazy, in about 15 minutes and I had the blood started a little after 5. Really late, but thankfully the Joy School group had agreed to postpone until 7 so that I could be there. The nurses kept telling me that I was too nice, that if they'd been in my position they'd be angry! But I had to remind them- they were not the ones at fault! Had they been, I might not have been showing such a pleasant side :)
I felt surprisingly well after the one unit of blood and am looking forward to the two I should receive tomorrow. Just not looking forward to the long waits!